what she did next could forever change transplant medicine. her family's story touches on so many of the ethical and financial dilemmas in health care right now that tonight we revisit dr. nancy snyderman's report on one mother's fight. >> reporter: just outside portland, maine, in the small town of lewiston, family and friends have gathered for a benefit in honor of 14-year-old jordan flynn, who has just learned she will need a bone marrow transplant. >> mm-mmm, i hate being sick. >> reporter: jordan has a disease called fanconi anemia, a genetic disorder that destroys bone marrow and increases her risk of cancer. >> the transplant scares me, because i've known people that have actually passed away afterwards. >> reporter: last april, her condition took a turn for the worst. she was in bone marrow failure, her blood counts dropping. you must have thought the weight of the world was on your shoulders. >> yep. today's one of those days. >> reporter: her mother, doreen, knows a bone marrow transplant is jordan's only hope for survival, and now s